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KMID : 1148320170020010034
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Journal of Korean Association for Qualitative Research
2017 Volume.2 No. 1 p.34 ~ p.44
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The Lived Experience of a Main Caregiver in the Family with Chronic Disease Patient
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Kim Joo-Hyun
Park Eun-Young
Lee Ha-Na
Kim Hyun-Ju
Yoo Jae-Boone
Choi Gyeong-Hye
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Abstract
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Purpose: The purpose of this study was to understand the lived experience of a main caregiver, in charge of a family member with a severe chronic disease.
Methods: The participants of this study were 13 main caregivers, who have a family member with a severe chronic disease. The data were analyzed through the phenomenological research method.
Results: This research concluded with: one core theme, five theme clusters and 13 themes. The one core theme was: `My Life is Not Mine.` The five theme clusters include: `The Dark Days Ahead, of What We Do,` `Serious Pressure,` `My Body is Broken (caregivers),` `Overcoming,` and finally `Endless, Long and Long tunnel.`
Conclusion: We must emphasize to a main caregiver of a chronic disease patient, to the fact that their life should be theirs, not the patients. In addition, we need to be attentive of their well-being, as well as the chronic disease Patients, and sensitively responsive to their problems.
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KEYWORD
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Chronic disease, Caregivers, Qualitative research
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